Katie Maj, who herself has mitochondrial disease, causing dystonia, mobility and balance issues, among other things, has just had her milestone birthday of 21 so decided to celebrate by taking on a mammoth challenge of exercise. Throughout the whole of October Katie has been pushing herself to her limits, swimming, trampolining, cycling, boxing, stretching, walking…
💚🙌🏻 We had a fab day at Hulme Hall in Port Sunlight on Sunday 2nd October! We raised a whopping ÂŁ163! We’re so grateful to everyone who donated items, for those who bought from us, and it was great chatting to some lovely people about who Leigh Network are and why awareness about Mitochondrial disease…
Mandy explains why she has set herself a new challenge to raise funds for Leigh Network, which she started during Mitochondrial Awareness Week. Click on the video to find out more and the link to donate is below. Everyone at Leigh Network is supporting Mandy with this fantastic fundraising initiative and we hope you will…
All this week we were posting all over our social media accounts to raise awareness of mitochondrial disease. Visit our Facebook, Instagram and Twitter accounts to see all the posts and find out more. We were so grateful to some of our Leigh Network family for sharing their thoughts about what mito…
What an amazing and humbling weekend we had at the first ever Leigh Network weekend for mitochondrial adults. On 12-14 August 2022. It made all the hard work worth every minute. A huge thank you to our mito warriors, parents and carers who came along. We also raised a glass to our good friend Laura…
Loneliness Awareness Week 13th-17th June During Loneliness Awareness Week we shared information on our social media platforms and introduced out followers to a charity called The Marmalade Trust who started the campaign in 2017. We at Leigh Network know the impact of feeling alone or lonely and this was part of the reason for Leigh…
During June Leigh Network supported Diabetes Awareness Week through sharing useful information about diabetes on our social media platforms. Some people affected by mitochondrial disease may also have the added challenge of managing diabetes. Knowledge is power and we know the importance of raising awareness about conditions like diabetes. There’s lots of information available on…
At the start of June we celebrated carers everywhere. Carers play such an important role in the lives of those with mitochondrial disease. We asked one of our families, Lisa, about their caring role. Here’s what Lisa said, “Being a full time carer for my daughter Lucy is hard work, she can’t do anything for…
 Dystonia is a neurological movement disorder that causes uncontrollable muscle spasms which can be extremely painful for some. Dystonia is estimated to affect 100,000 people in the UK, and there is no cure. To recognise Dystonia Awareness Week 2022, we asked friends of Leigh Network to share their stories. Faye’s Story: “To look at me,…
See the PERSON, NOT the wheelchair. This International Wheelchair Day, let’s raise awareness of wheelchair users! Faye has a blog called Access Champion where she shares her experiences at various venues and discusses their wheelchair accessibleness. Give it a read and share with us your experiences of being a wheelchair user! Get in touch via…