In February it is Feeding Tube Awareness Week. Feeding tubes are a great way to get vitamins, nutrients, and medicine into a person who may have a low appetite and a shortage of Mitochondrial energy to digest food. Donna has kindly shared her son Harry’s story: I was so apprehensive to go down the feeding…
Leigh Network would like to welcome Robyn to the team! She is a student from Manchester Metropolitan University who for the next few months will be taking over our social media channels. Upon joining the team Robyn said: “I am so excited to support Leigh Network and create some fun and engaging content for…
Mito warrior Laura Jakubowski aged 36 who has RRN2B took on her own new year challenge – a sit down cycle challenge! Laura peddled EVERYDAY throughout January. This was extremely tiring for Laura which makes the whole challenge even more inspiring. Leigh Network is so thankful to Laura, who also managed to raise…
What a year it has been! There have been ups and downs, lots of happy and sad times and most definitely memories made! We have had so many brilliant zoom calls where we have caught up with friends old and new! We have supported each other through the 3rd lockdown due to covid. We have…
Around the world mitochondrial disease research is taking place. We’ve been honoured to take part in Leigh syndrome discussions with doctors and mito professionals from around the globe. It was truly inspiring to hear their passion and energy about Mito and their patients. Leigh network is proud to support the Newcastle welcome trust Leigh syndrome…
This is the medication I take everyday, 20 of these tablets are taken in the morning and I tend to choke on them with juice so I have them now with a thickened drink. The mito cocktail is a cocktail is a mixture of vitamins, pain relief medication and any symptom management. It is tailored…
What is mitochondrial disease?FullSizeRender
IMG_0629 I did it! 🤩 I who have mitochondrial disease, encompassing: fatigue, muscle weakness, dystonia, aphasia, blindness and no treatments, completed a 5k bike ride! 🚴 I never thought achieving something like this would be possible but with the support of wheels for all, it was. On about lap 8, my muscles were starting to…