Around the world mitochondrial disease research is taking place. We’ve been honoured to take part in Leigh syndrome discussions with doctors and mito professionals from around the globe. It was truly inspiring to hear their passion and energy about Mito and their patients. Leigh network is proud to support the Newcastle welcome trust Leigh syndrome…
This is the medication I take everyday, 20 of these tablets are taken in the morning and I tend to choke on them with juice so I have them now with a thickened drink. The mito cocktail is a cocktail is a mixture of vitamins, pain relief medication and any symptom management. It is tailored…
What is mitochondrial disease?FullSizeRender
IMG_0629 I did it! 🤩 I who have mitochondrial disease, encompassing: fatigue, muscle weakness, dystonia, aphasia, blindness and no treatments, completed a 5k bike ride! 🚴 I never thought achieving something like this would be possible but with the support of wheels for all, it was. On about lap 8, my muscles were starting to…
A huge thank you to our wonderful family who took the time to take part in our share your smile week. We are sire your beautiful smiles made everyone who saw them radiate their own smile too. #shareyoursmile #mitoaware #LeighNetwork #mitowarrior Www.leighnetwork.org.uk Www.gofundme.com/zuvrp-leigh-network-family-mito-meetings
Today we meet Susan an adult living with mitochondrial disease 💚Here are some things which make me smile…..my daughter Emily, movie nights, spending time with family and friends, being outside in the sun, laying on a beach listening to the sound of the waves and doing fun exhilarating things like the zip wire at the…
Today we meet Abel, who has Mito. Swimming makes Abel smile. Abels parents run the Abel Foundation https://www.theabelfoundation.org.uk/ Abel definitely loves the water, going in the pool gives him freedom to move and helps relax him 🥰🤩 It’s great we can go on this journey together…..☺ #mito #shareyoursmile #mitoaware #leighnetwork https://uk.gofundme.com/f/zuvrp-leigh-network-family-mito-meetings Www.leighnetwork.org.uk