We were extremely proud to join the international mitochondrial community during Rare Disease Day to not only support raising awareness about all rare diseases but also about the significant contribution that research into and understanding mitochondria does and can have on the whole rare community. We were able to take part in a tweet storm with The Wellcome Trust Centre in Newcastle and also participated in an online event with Rare Aware Glasgow. During the Rare Aware event Faye, our founder, was able to share with medical students her experiences of Leigh Syndrome and also discuss in general mitochondrial diseases and the work of Leigh Network.